It is becoming real with less that 3 months to go unit I depart September 12 on my “Pilgrimage” to walk 650 miles through the Pyrenees and on the Camino de Santiago.
Also real is that I am dedicating my walk to raise funds for the Osteogenesis Imperfecta Foundation. I am learning that to do this I have to ASK you to, please, make a donation by simply clicking the link at the bottom of this page. It will take you directly to the OI website.
CHARLOTTE GRACE LUDWIG
I have to admit that at this juncture the magnitude of my walk is becoming “real.” I find myself fighting off moments of self-doubt and struggling to have faith that my joints will hold together. So, I am stepping up (pardon the pun) my conditioning to include one 10-15 mile hike with a pack each week in addition to 20 mile bike rides, my weekly squash match and stair workout. This will modify as the weeks go by.
The reason for this update is not to bore you with my exercise routine but to ask you for your support. I am dedicating my walk to the Osteogenesis Imperfecta Foundation. This is a cause which has great significance to my family. Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.” These genes affect how the body makes collagen, a protein that helps strengthen bones. The condition can be mild, with only a few fractures during a person’s lifetime. In more severe cases, it can involve hundreds of fractures that occur without any apparent cause. Treatments include bone-strengthening medications, physical therapy, and orthopedic surgery.
My nephew Eric, who was born 43 years ago with OI, has been an inspiration to me his entire life. I’ve watched him grow up facing the many unique challenges of his life with grace and humor. He has become a successful attorney, husband, and recently a father. He and his wife Janine welcomed Charlotte Grace into the family July 12th 2016. She inherited IO. However, due to the research and efforts supported by the OI Foundation, new treatments have been developed. Because of these discoveries, Charlotte has commenced a treatment program that promises to enhance her quality of life and reduce the many of the challenges that Eric faced.
I will be walking more than 650 miles, 1000 kilometers, or 1,300,000 steps. Choose to donate per mile, kilo, or step. Whatever formula you use your donation will be helping improve the quality of life for many young people like Eric and Charlotte. Thank you.
(this link will take you directly to the OI website. I have no contact with your donations. )